I have a new Primary Care Provider which means that I also have an initial appointment set up. On the intake sheet, I entered that I have been diagnosed with Urge IC, and that I wear protection. I’m the type of person who doesn’t like taking medication and I’m nervous to see how the new doctor handles that I’m perfectly content in diapers.
Who else has explained this to their doctor? How did they handle the situation?
When i switched to a university hospital for a better urologist, in hte hopes to get rid of my rethrastenosis permanently, I too told him I had nighttime incontinence back then and wear for that but didn’t want it fixed by any of their fancy implants or surgeries, they didn’t blink an eye back then.
But after my OAB and detrusor sphincter dyssynergia came up high and we discussed options, again I said incontinence should not be a blocking factor when it comes to quality of life, but he wouldn’t accept that and insisted I get a catheterisable urostomy.
The endocrinology department of that same hospital frowned upon this treatment due to the implications and risk for infection but urologist waved it off.
I then went back to my old urologist after wearing a foley catheter as a workaround, and he agreed to help me there with a different surgery.
I have been much better ever since, though he needs to do it again because part of the cut has grown back together.
been there with the caths and they suck after 2 months of constant infection i told them to take the dang cath out and not ever put one back in i have been so much more happy so what i have to wear a diaper they to are just undies
It’s a bit different, but my consultant initially considered sacral nerve stimulation for me, but concluded that I was managing “remarkably well” with nappies, and that SNS has complications/side effects that wouldn’t be particularly compatible with my lifestyle, and that I would be better off sticking with the nappies. Now, I wouldn’t say that I’m enormously happy being incontinent and having to wear nappies most of the time - it can be a serious pain in the backside - but SNS would have probably limited my participation in some of the things I enjoy most (because you have to be very careful with the implant site) and giving up mountain biking, skiing, and climbing would have felt like a very high price to pay. So I’m pleased with the way my doctors have handled it - it’s been in full consultation with me and what I need.
There are a few doctors out there who see problems to be fixed and want to steamroller over your views, but in my experience it’s pretty rare and most just want to improve your life. I’ve rarely had doctors just prescribe me stuff without discussing it with me, and never have since I’ve become more knowledgable about my condition.
As with any condition or topic, you are the boss of you. You take their advice and decide for yourself. My cardiologist wanted me to go on blood thinners after a single bout of AFIB. I declined and made other lifestyle changes to mitigate the risk. I am an active person and I didn’t want to fall off my road bike and bleed to death. She said “well, just don’t get into an accident”. I drive the busiest road on the east coast daily so that’s a crap shoot. My point is you aren’t obligated to take every pill they prescribe. You have choices with anything. I use their insight to make informed decisions. You do you. Good luck.
Thanks for all the help. I’m still very active, and don’t want surgeries, and I never want to be cathed. I’ve heard too many bad stories with them. I guess if the new doctor won’t accept my diapers, I’ll just go back to the VA. I talked to a friend that explained that diapers don’t make the doctor any money. That trying other things will bring repeat trips and procedures. He said that’s why they don’t like to “give up” and accept diapers.
Is that just a cynical view, or is there truth to it?
that’s part of it for some, the urostomy they wanted to suggest to me did involve a lot of appointments, check-ups and with a high risk for complications a second surgery so they’d definitely earn a fair share on it.
But there are also those who genuinely want to help you in a way that doesn’t involve their patients with needing diapers which is still viewed as something degrading, so they assume that any other solution would give a better quality of life. This is however not always the case, and I’m still in favour of closely looking at each case with the patient considering his personal lifestyle and mental view on things.
I would be surprised if you had to give up mountain biking, climbing, or skiing due to a sacral nerve stimulator. My doctor has told me to wait until six weeks after my surgery before I get back on my bike or start running. Short of aggressive contact sports, though they haven’t given me any real limitations. Maybe you mountain bike differently than I do!
Can anyone tell me what they do at an initial appointment? Will there be any reason that she will see my diaper?
I would be surprised if they wanted you to undress at an initial appointment. They might want to listen to your heart and lungs and feel your abdomen, but as long as your diaper doesn’t stick out of your pants, I wouldn’t expect them to see it.
That said, I would mention the incontinence problem at the initial appointment. You might be a bit circumspect about any enjoyment you derive from wearing; it could be as simple as mentioning that you have some bladder control issues, and if they ask how you manage it tell them you wear a pad.
I thought the same thing. Possibly lift my shirt. But my diapers rise high in the back. But it’s ok. I thinking it would be different if they handed me a gown. I put on the background paperwork that I have been diagnosed with Urge Incontinence and that I wear protection.
Can anyone provide an experience wearing an ABDL diaper to a doctor’s appointment?
I have. It was an RCD and they said that they liked the look a lot better than the look of the medical diapers I typically use. I have not worn one of my Crikalz but I assume they would have the same reaction.
Why would you want to do that? Given the difficulty you’ve had with your urologist, it might be a good time to forgo the ABDL diapers, to avoid getting stereotyped by your new PCP. Seriously, can you not live without your ABDL accoutrements for the hour or so it takes to see your doctor?
Oh I’m not going to wear an ABDL diaper to the appointment. I just wanted to know if anyone else had. I wouldn’t have the guts.
my thoughts exactly!
I’m already breaking my head on deciding what type of medical diaper to wear to the OR because I know the moment I have to lay down on that operating bed I’ll leak something, they usually ask to remove underwear (since it’s an endoscopic procedure) so wearing a pad isn’t an option and I don’t want to buy pull ups just for that occasion.
throwing in abdl diapers in the mix is simply asking for trouble, it’s not because 1 out of 10 doctors respond nice to it out of politeness that every doctor does. I once had a urologist that was very angry when I told him the turp failed and it was all blocked again, he said i was lying and made me go with his younger colleague, who saw with camera that there was massive scar tissue.
Again, I never said that I was going to wear an ABDL diaper to the doctor’s office. I’m going to be wearing a Seni Super so I can remove it if needed. My appointment is with my VA provider who already knows that I’m ABDL. I would never wear an ABDL diaper to my new PCP appointment, and I’m actually thinking about wearing a pull-up to that one.
A diaper is a diaper regardless of the prints and colors. I’ve worn Tykables and crinklz to the dr and never had they said anything different compared to when I wore a white diaper. They don’t care.
wear what you want, and be confident.
You could always say your wife ordered them online and you didn’t want to hurt her feelings 
I like that.