Has anyone here ever experienced their incontinence gradually build up to full incontinence? Despite being a DL, I know that I want to control the where and when. However in the back of my head in afraid that one day my bladder is going to turn on me. I was a bedwetter nightly until I was 16. Since then I have yet to go a full year without wetting the bed. It does seem to be correlated to stress as it happens multiple nights in a row when life is tough, and then disappears for awhile. About a year ago while driving home my bladder let go. That was the first daytime accident since a little kid. I told my doc about that one and he did a urinalysis to check for diabetes and that was negative. He hasn’t said anything else and it hasn’t happened again so I haven’t asked him again. Just getting worried that even though I’m only 34, by the time I’m 40 I’ll be full-time.
I’m kinda the same way. Twice in the last couple weeks I’ve started to pee. Once was in the kitchen doing dishes. There was a large wet patch and I want to the bathroom. The other I was taking a shower and just started to pee. I don’t pee in the shower, that’s why it was so weird. I put both instances in my voiding journal for my doctor.
My incontinence started with slight dribbling. I started noticing my under wear was damp and stained by the end of the day. Then it obviously was getting worse as damp patches would appear in my crotch in my jeans. Not long after that I started wetting the bed again. Gradually over the next 6 months my incontinene reached the point I needed padded under wear, then pull ups and finally proper tapped nappies.I now have very little control over my bladder.My diagnosis is diabetic related neuropathy.
Yes.
After some years of losing control of my plumbing, the cause was eventually diagnosed.
MS is such a wonderful disease.
I hope your condition isn’t so dire.
I am sorry to here that. #MSsucks
Another with MS here 
keeps me on my toes but I’m grateful I can still walk and work :call_me:
My control has gone the other way and has gotten a bit better over the past 5 years. It could be that this is because my IC resulted from a seizure and medications that I was taking at the time. There are times when I have some control but it varies from day to day. It seems like it would depend on the cause of your IC as to whether it’s getting to maintain its current status, worsen, or improve. Don’t let it worry you, try to reserve that for the things in life that you’re able to change. Stay padded, you never know.
My Bladder issues also started slowly from post pee mini surges to full bladder releases over a relativity short time, its now been 5.5 years of being padded 24/7. If you do endup in diapers its really not that bad with premium diapers you can trust bladder issues are manageable, Hopefully you can avoid having bladder issues but if you do remember you are not alone there are millions of us out there that relay on diapers 24/7.
I started with mild PMD in my 20’s , and it gradually gotten worse from there.
Now-a-days I can not feel my bladder ( no ‘urge to pee’ ) and have very little control … it leaks all the time, and I frequently void … the neurologist says it’s “neurogenic bladder”, and my nerves will eventually degrade to the point I will be both bladder and bowel incontinent ( may also end up in a wheelchair ) .
What about being padded for urinary issues and needing to go #2? With pull-up style that solution is easy. What about for tabbed style? Do you risk ruining a clean diaper to use toilet, or just ‘use’ it and then clean up? Probably overthinking things, but the future scares me right now.
That’s a good question. I’m pretty regular so I go #2 when I get up and the diaper up. Then when I change in the afternoon, I have a BM. Then at night if needed. I don’t mess my diaper.
Everything depends on an individual’s needs.
For folks who have no choice in the matter? I know I went through a transition period where first it was my water works that became unreliable, and then the backdoor plumbing started. Now it’s just easier to go prepared for any/all situations, and deal with them as they happen.
That is good advice. I was born with a gastrointestinal disease, and I don’t have issues with that ‘end’, but when I have to go I have to go and it isn’t on a regular schedule or anything.
I see. Sorry about that. I actually love to mess my diapers, it’s my wife that won’t let me.
I find that I can pull down most elastic-waist diapers without damaging them, but I don’t have very prominent hips. If you can’t get the waistline down over your hips, then you could try using diapers with a landing zone that will let you undo the you’re take on one side. I’ve been able to do their with diapers with second-chance tapes, leaving just the blue lower tape in place on the front of the diaper, but it’s a bit trickier.
If you’re not having lots of BMs, it may not be that big an issue. You can work on training your bowels to move at the same time each day, and unless you have diarrhea you will end to being able to have a BM before you put on a fresh diaper to go about your day.
It’s easy as long as you use elastic-waist diapers, pants pads as Italuv already wrote. I also go at last seven times a day to avoid accidents - so with the wright equipment it’s a no-brainer also for #1.
Years ago I read an article which defined incontinence as, “Anyone who regularly wets their pants beyond the age of four is incontinent”. By this definition, I was incontinent from a very early age, although I typically only had two or three small daytime accidents and two or three nighttime accidents each week for most of my life. In my early thirties my mild incontinence gradually started getting worse, and I started wearing diapers, although not yet 24/7. In 2006 my incontinence spiked and I was diagnosed with severe OAB due to S3 nerve Tarlov Cysts, Cauda Equina Syndrome and DSD. After surgical treatment to correct the DSD I was left with the severe OAB and significantly reduced sphincter tone in my external bladder sphincter, and I have been diapered pretty much 24/7 ever since.
I can defintiely relate to what you are going through. Basically, I have been a life long bedwetter. (Much to my parents disappointment.) Wearing diapers and plastic panties to bed through my early years, into my late teens, and then again as an adult has pretty much been a necessity for me. I used to have somewhat decent control during the day, but I am 33 and have noticed it declining over the last few years unfortunately. It is gradual now, but like you, I am worried what the future holds. I used to only dribble a little bit and found that pads were sufficient. Then it progressed to the point the pads rarely held all the liquid, so I started to change pads during the day. But eventually made the decision for pull-ups or thinner diapers during the daytime. Especially when I noticed sometimes that I was wetting without even realizing it. When I notice I am having a few good somewhat drier days, I will sometimes take a chance and wear a pad with some sissy panties. But that always makes me nervous and I usually carry a diaper and change of pants with me just in case, as I too have had the unfortunate experience of unexpected accidents showing on my pants in the middle of the day. More control would be nice, but I too fear the onset of incontinence is coming my way unfortunately.
When mine started was mild but with a lot of uti’s and prostatitis attacks can hit anytime.
I been have dribbling issues for a year now. And bedwetting more too